Skip to main content

31 for 21: Ain't it kinda funny?

We're all wanting to be good little advocates, and it is a priority of mine to put a good and real perspective of life with Down syndrome "in the house." But we're all so busy just living life with our little ones that we're too busy to talk about how we're doing it. Funny.

And I guess, as many have said better than I, that's the point. Yes, we were shocked. Yes, I thought life was (cue the dramatic movie music) *forever changed.* And yes, there have been some things to figure out, to say the least. But the beauty is, you don't have to figure it all out at once. You get to wake up just one day at a time, like everyone else. And ya know what's crazy?? Life goes on. We do what we do, and we find it to be so much beyond more enjoyable than what we thought. PLUS, we have these ridiculously cute kids to play with in the meantime!


Just wish I could bottle this and share it with all those who are a few paces behind and still freaking out. It sure would've done me some good a couple years ago.
Labels:

Comments

  1. Melissa @ Banana MigraineOctober 25, 2008 at 9:23 PM

    Been feeling the exact same way today. :)

    ReplyDelete
  2. TriciaOctober 25, 2008 at 10:56 PM

    EXACTLY. :) It feels great, doesn't it?

    ReplyDelete
  3. AnonymousOctober 25, 2008 at 11:30 PM

    Agreeing completely!

    Blessings,
    Leslie

    ReplyDelete
  4. ChristinaOctober 25, 2008 at 11:47 PM

    So awesome :) Hey..I have been meaning to ask..how are you feeling? And, I gave you something on my blog :) Muah!

    ReplyDelete
  5. sherriknitsOctober 26, 2008 at 2:37 AM

    I so agree.
    And I hope that we're helping those along who are behind us, too....it's kind of like a chain...we can always hope that those a little behind us are encouraged by what they see.

    ReplyDelete
  6. JRSOctober 26, 2008 at 7:58 AM

    You're right, and I love the pic. ---Jen

    ReplyDelete
  7. debi9kidsOctober 26, 2008 at 6:43 PM

    I think that is why mamas like you need to be advocates :)
    You could give comfort to so many worried mamas.

    ReplyDelete
  8. AndreaOctober 26, 2008 at 8:15 PM

    This thought just popped intho my head too...When they first said the words "twins" life as I knew it WAS over!! Now, I can't imagine my life without either little boy. I love them so much and my life is better because of each of them!!

    ReplyDelete
  9. Amy FlegeOctober 26, 2008 at 10:13 PM

    love that picture. she is starting to look older mommy!

    ReplyDelete
  10. AnonymousOctober 27, 2008 at 8:50 AM

    I wish you could bottle that cuteness:-)

    ReplyDelete
  11. MammaMayMillerOctober 28, 2008 at 3:18 AM

    Amen...

    ReplyDelete

Post a Comment

Thanks for commenting!! I only ask that we all keep it positive, respectful, and clean. Comment moderation is on for now. (As this is my blog, I reserve the right to delete any comment I deem inappropriate for any reason.) If you use the anonymous option, be sure to sign your name. Thanks!!

Make it a great day!!

Popular posts from this blog

Can I get a do-over?

If you are in need of a laugh at another's expense, I invite you to read on... really, it's totally ok. I can take it. This might end up long, but I wanna remember this special day. Oh so special... Today is my first day to have both girls and be on my own. Yeah, it's been two weeks, but I'm apparently slow at learning how to deal with this kind of thing. I knew it would be a challenge, but I thought with starting way early, we could make it. The quick ending is that we did make it...but that's not really the whole story. Kinlee's been sleeping til about 9 am or so after getting up twice in the night. That's ok, I'm dealing with it. But since Braska is supposed to be at school at 10 am on Mondays, I thought I better not sleep in like I prefer, and instead, I should get up and get things moving earlier to be sure we're on time. Not a problem, since Braska decided to be up twice last night in addition to Kinlee's two times. One time overlapped...so...
25 comments
Read more

New Fave-o Site

Get a cup of good hot chocolate, put on your comfy clothes, and settle in with some non-rushed time to check out Dan Drinker's site . I can't even tell you how much I love watching these videos and reading what his family has written about him. I feel like I want to tune into the Dan Drinker 24-hour channel or something. Dan is a young man with DS who is living and loving life, and his younger brother Will captures much of it on video. It's priceless, in my opinion. I just love it. Check out the blog, watch some videos, tell them that you've been there. I wish this guy lived near me! The most recent post, about Breaking Up with Christine , is funny and poignant. Here's a couple of my other favorite videos so far... I've still got more to watch! His 7th Prom A Basketball Date with Sarah
8 comments
Read more

Little call, big letters

This will make more sense to you DS moms and families out there... I apologize for the cryptic nature, but you'll have to trust my reasoning. Braska had a lab draw on Tuesday last week. The GI called me Wednesday and said there were some significantly elevated levels in the results. Ok fine. Not like we've never had an abnormal lab. But then he used *those* words...the C word and the L word. Said he'd be talking to hem/onc. We needed to go redraw on Friday morning. We didn't freak or anything, but when I hung up the phone, I thought, "Wow, so that's what it's like the first time they mention it." We took her for her draw again on Friday morning, and we figured everything was fine since we got no call over the weekend. Yesterday I checked in with them. Dr. R confirmed that everything was clear, almost in a "weird way," but they checked with the lab to make sure it was a viable result. All is well. Follow up in 6 months as usual unle...
17 comments
Read more