Skip to main content

31 for 21: Thanks Karen K

Last night while we were at the concert, good friend Karen K came over to stay with Braska. She has two cuties herself, Maddy and Grace, but they got to spend the evening with their dad. Braska's had a bit of Must-be-with-Mommy-itis lately, so I was hoping that this wouldn't be one of those nights for her.

We've left Braska with friends before, but we typically arrange not to be gone over a feeding time. But this time we couldn't quite work that out. So Karen came over early enough to listen to my run-through of the important info.

~If you want to try to feed her orally, here's the food, already thickened.
~Be sure to use this particular spoon.
~She won't open her mouth, but she sticks her tongue way out when she wants more.
~You have to have a spoonful of food ready and within sight for her to tell you she wants more. If it's not there, she seems to assume there's no more to be had.
~Push down slightly on her tongue and then into the mouth. She'll close her lips, then pull the spoon straight out.
~Don't use the upper lip or gum to scrape the spoon, coming out upward. Must come straight out.

~For milk feeding, here's the syringe and extension tube.
~Make sure to have a washcloth underneath the end of the g-tube when you open it. Stuff comes out.
~Prime the extension tube first to avoid air in the belly. (Demonstration given.)
~Hold the syringe of fluid just a few inches over her belly, as the higher it is, the faster it goes. Sometimes too fast can upset things.
~If it starts to slow completely or she starts to cough up little bits of milk, you're done, and she's full.
~Otherwise, she can take all 6 ounces.
~When finished, again make sure the washcloth is under. Backflow will happen.
~Rinse the syringe, extension tube, and bottle right away to avoid clogging.
~Try to burp, but don't be surprised if it doesn't work.

They played and laughed and played. Braska ate marvelous for her oral feed and had no issue with her tube feed, and she went to bed like a champ, as always. Karen reported a good evening all around and even got in some peace and quiet with some always-important Seinfeld. God bless you, Karen. Much appreciated!

Comments

  1. We had a fabulous time, she was a perfect Angel!! Don't forget to mention that I am pretty sure that you have beeboppin' musical little lady on your hands. I am still impressed that she can keep a beat like that:-) And we all know she got that from her mama. Not me, I'll be honky clappin' my way through life with the best of 'em! Karen K

    ReplyDelete

Post a Comment

Thanks for commenting!! I only ask that we all keep it positive, respectful, and clean. Comment moderation is on for now. (As this is my blog, I reserve the right to delete any comment I deem inappropriate for any reason.) If you use the anonymous option, be sure to sign your name. Thanks!!

Make it a great day!!

Popular posts from this blog

BabyLegs Giveaway

That's right! A BabyLegs Giveaway!! BUT...this giveway has an extra dose of generosity required for the participants. Can you handle it? BabyLegs has been so great to us, and they have surprised me once again! It all started back when the superb Tricia and Little Miss G sent Braska a pair many moons ago. We'd seen them on a few of our little blog friends, and I thought they were adorable. And the idea of keeping Braska warm while being able to access her g-tube without having to undress her was very appealing. So when we received our surprise pair from our friends out East, we were just plain giddy! I quickly ordered several more pairs to go with her wardrobe. It didn't take anytime at all for BabyLegs to become my standard gift at baby showers, and I especially loved sending them to moms that I found who had fresh little new babies with DS. They're perfect for everyday with a long-sleeved onesie, they are great under a little dress, and they are so helpful with thera...

Peek at tomorrow

This weekend we were at my in-laws' place for a very quick visit. We went largely for a housewarming for Cheryl and Ethon, which was Sunday afternoon. They have a pretty darn cool place, so yay for you guys! Sunday morning pictures are normal, we do them alot. This week, before we left for church, Carole took a few pics of my little poonchin. They didn't all turn out great, as she kept making funny faces and moving at the last second. I stole them off her camera for my collection, and when I looked at this one I just kind of stopped. It's not any super great picture. It's cute, but hey, how could it not be? She's waving at herself, that's the reason the hand is up. But that's not what I saw. Go ahead, click on the picture. Can you see it? I don't see Down syndrome. I don't see a feeding tube. I don't even see a tough cookie, open-heart surgery survivor. It's not my favorite picture of her ever, but I can't hardly stop looking at it. This...