Saturday, October 20, 2007

31 for 21: Ignorant me

I need to put together "the birth story" before the end of the month, but I've not got the energy this evening. It's amazing to think about how much we learned in the last 11 months. I found an email recently that I sent to many family members and friends right after Braska was born, and it had the statement in it that "the doctors think she has some degree of Down syndrome" but we wouldn't know details for a few weeks. Crazy, huh? I guess I really was more UNaware than I even realized. I do remember hoping and praying that it was "the kind" that wasn't "so bad." I know now that what I was thinking of, even though I had all the wrong ideas and info, was mosaic DS.

This just reminds me that even educated people, people who care and never intend to offend, if they have not had direct contact with DS, shouldn't be expected to say all the right things.

You've come a long way baby! I'm just trying to keep up.
(5 minutes old and 11 months old)


  1. Look at all that hair!!! She just gets cuter and cuter. I remember a lot of my family members were hoping for the "not as bad kind" too. You are not ignorant. I think you are wise. You allow yourself the room to learn new things.

  2. I remember when our Genetics doc thought Gabi had Mosaic before her gene mapping came back. I was so excited that she might not have "Full Downs." I feel so dumb thinking back to it. I guess I was pretty un-exposed!

  3. You are definitely not ignorant. I had some of the same experiences - it just takes time to learn and become familiar with new territory.


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