Skip to main content

An eye plan

(Backstory here… if needed.)

We saw Dr. L on Monday.  He decided that although there IS Manifest-Latent Nystagmus present with Braska, it is not the primary concern that needs to be repaired first. He feels that the strabismus/esotropia (Left eye crossing inwardly) can be corrected first, hopefully making improvements in the head tilt that Braska consistently has.  (That’s the tilt toward her right shoulder.) 

The tip up, chin up in the air looking down her nose at everything, is mostly likely still related to the MLN, and we will be looking at a second surgery to correct that, probably in September.

So for now, we’re planning on surgery #1 on May 18 at StL Children’s.  We appreciate your prayers for health between now and then, a successful and uncomplicated procedure that day, and a swift recovery with as minimal a level of discomfort as is possible.

Labels:

Comments

  1. RuthannApril 29, 2011 at 6:46 AM

    Will be praying that Braska's surgery goes well with no complications.

    ReplyDelete
  2. krlrApril 29, 2011 at 8:25 AM

    You got a surgery date SO fast! I'm sure everything will go smoothly, esp since it sounds like you're old pros w/anesth.

    ReplyDelete
  3. ShelleyApril 29, 2011 at 11:25 AM

    How did they initially diagnose this? Kullen does that...holds his head up and looks down his nose at everything. The eye dr said it was because he needed glasses, which he now has. Now, they say it's "just a habit". We are constantly telling him to put his head down! It drives me nuts!!!! He does not have weak eyes muscles (they don't turn in, move or anything).

    ReplyDelete
  4. UnknownMay 3, 2011 at 2:14 PM

    I am available for babysitting, hand-holding, lunch, tears. Whatever is needed and some stuff that isn't.

    ReplyDelete

Post a Comment

Thanks for commenting!! I only ask that we all keep it positive, respectful, and clean. Comment moderation is on for now. (As this is my blog, I reserve the right to delete any comment I deem inappropriate for any reason.) If you use the anonymous option, be sure to sign your name. Thanks!!

Make it a great day!!

Popular posts from this blog

31 for 21: What to say

I have encountered plenty of people who ask "How old is she?" when Braska and I are out together here and there. They always guess her age about 5 months younger than she is, but that's ok, since that's what size she is. I have said several times that I can imagine it will bother me a bit more, although still not a huge deal, when she turns one next month and I see their reaction to that, as she still is in her car seat/carrier when we're in a restaurant or in a store since she doesn't sit up. Today, I met some friends for brunch. The waitress was a nice enough, very young girl, and she started cooing at Braska right away. That's nice. I don't mind, Braska likes the attention, and I'm proud of my cutie. The waitress asked her age, and I told her 11 months. She then said, "But she's not walking yet?" as she noticed that she was up to the table in her car seat/carrier. I just agreed and said, "Not yet." She said she h...
11 comments
Read more

Can I get a do-over?

If you are in need of a laugh at another's expense, I invite you to read on... really, it's totally ok. I can take it. This might end up long, but I wanna remember this special day. Oh so special... Today is my first day to have both girls and be on my own. Yeah, it's been two weeks, but I'm apparently slow at learning how to deal with this kind of thing. I knew it would be a challenge, but I thought with starting way early, we could make it. The quick ending is that we did make it...but that's not really the whole story. Kinlee's been sleeping til about 9 am or so after getting up twice in the night. That's ok, I'm dealing with it. But since Braska is supposed to be at school at 10 am on Mondays, I thought I better not sleep in like I prefer, and instead, I should get up and get things moving earlier to be sure we're on time. Not a problem, since Braska decided to be up twice last night in addition to Kinlee's two times. One time overlapped...so...
25 comments
Read more

Little call, big letters

This will make more sense to you DS moms and families out there... I apologize for the cryptic nature, but you'll have to trust my reasoning. Braska had a lab draw on Tuesday last week. The GI called me Wednesday and said there were some significantly elevated levels in the results. Ok fine. Not like we've never had an abnormal lab. But then he used *those* words...the C word and the L word. Said he'd be talking to hem/onc. We needed to go redraw on Friday morning. We didn't freak or anything, but when I hung up the phone, I thought, "Wow, so that's what it's like the first time they mention it." We took her for her draw again on Friday morning, and we figured everything was fine since we got no call over the weekend. Yesterday I checked in with them. Dr. R confirmed that everything was clear, almost in a "weird way," but they checked with the lab to make sure it was a viable result. All is well. Follow up in 6 months as usual unle...
17 comments
Read more