Skip to main content

Some answers for our normie

Just got back from the dr's office with KiKi. She has blisters on the back of her throat. Well, whatta ya know?! Something IS wrong! I'm relieved in a way, because this whole deal of the unknown is the most challenging to me. Dr. A also gave me a script for lactulose to help with her constipation too. Braska had this issue and did well on this med, so I'm glad she agreed to try it for Kinlee. Hopefully, if we can get those two things fixed (just pain support for the blisters) then maybe Happy KiKi will return.

I keep meaning to do a full post on this, but I'll just state it for now: "Everyone" seems to think kids with DS are hard work, but Kinlee is WAY more difficult and more exhausting and more frustrating than Braska has ever been in her almost 3 years. That doesn't mean we don't love her and enjoy her differences, of course, and there are rewards, but for the record, normies are no cake walk either in my book!

(Just to clarify our "normie" and "Downsie" terms... they are terms of affection given by M to the girls. Nobody is claiming they're PC, but if you've been around us AT ALL, you'll know that's not really a forte of ours anyway. So don't be upset... I kind of see it like calling a roly poly baby "chubkins" or "our little Michelin baby" or whatever. There's only love there, people. )
Labels:

Comments

  1. heidi marieSeptember 21, 2009 at 5:08 PM

    sounds painful. i can't even imagine. is there a reason she got blisters on the back of her throat. i don't blame her for being crabby, i would go crazy, too. do you ever hang out in the old part of st. charles? i thought that you mentioned you lived close to the area. justin and i have eaten at rottweillers..i think is the name of it. pretty good!

    ReplyDelete
  2. MichelleSeptember 21, 2009 at 10:56 PM

    I hope Kinlee's feeling better!

    I say the same thing about Lucas! Much more difficult, at least so far. I've teased that if he was my first he would have been my last! LOL the only area he's been easier in has been dr appts - Kayla has always been uneasy and apprehensive and sometimes quite freaked out by anything medical. Lucas sits there and lets them do whatever to him without moving a muscle.

    ReplyDelete
  3. RochelleSeptember 22, 2009 at 10:55 AM

    Glad that you found out what was causing Kinlee to be so crabby, hoping the meds work and she is back to a happy go lucky baby in no time. It is NO fun to have a clingy, unhappy baby!
    Hope she rests well and you get a much needed mommy break!

    ReplyDelete
  4. MOMSeptember 22, 2009 at 6:16 PM

    So what caused the bumps???

    ReplyDelete
  5. JRSSeptember 22, 2009 at 9:22 PM

    Is it a viral thing? I have to say, after Sophie, Helena has shocked me to the bone. It doesn't even matter that Alexander was first. Sophie has become my norm and Helena is a pistol.
    ---Jen

    ReplyDelete
  6. RiaSeptember 22, 2009 at 9:54 PM

    glad to know that the doc discovered the reason to Kiki being cranky lately. I hope she feels better soon.

    ReplyDelete
  7. SandiSeptember 23, 2009 at 9:14 PM

    I love the non-PC terms!

    And hope your normie feels better :)

    ReplyDelete

Post a Comment

Thanks for commenting!! I only ask that we all keep it positive, respectful, and clean. Comment moderation is on for now. (As this is my blog, I reserve the right to delete any comment I deem inappropriate for any reason.) If you use the anonymous option, be sure to sign your name. Thanks!!

Make it a great day!!

Popular posts from this blog

31 for 21: What to say

I have encountered plenty of people who ask "How old is she?" when Braska and I are out together here and there. They always guess her age about 5 months younger than she is, but that's ok, since that's what size she is. I have said several times that I can imagine it will bother me a bit more, although still not a huge deal, when she turns one next month and I see their reaction to that, as she still is in her car seat/carrier when we're in a restaurant or in a store since she doesn't sit up. Today, I met some friends for brunch. The waitress was a nice enough, very young girl, and she started cooing at Braska right away. That's nice. I don't mind, Braska likes the attention, and I'm proud of my cutie. The waitress asked her age, and I told her 11 months. She then said, "But she's not walking yet?" as she noticed that she was up to the table in her car seat/carrier. I just agreed and said, "Not yet." She said she h
11 comments
Read more

Little call, big letters

This will make more sense to you DS moms and families out there... I apologize for the cryptic nature, but you'll have to trust my reasoning. Braska had a lab draw on Tuesday last week. The GI called me Wednesday and said there were some significantly elevated levels in the results. Ok fine. Not like we've never had an abnormal lab. But then he used *those* words...the C word and the L word. Said he'd be talking to hem/onc. We needed to go redraw on Friday morning. We didn't freak or anything, but when I hung up the phone, I thought, "Wow, so that's what it's like the first time they mention it." We took her for her draw again on Friday morning, and we figured everything was fine since we got no call over the weekend. Yesterday I checked in with them. Dr. R confirmed that everything was clear, almost in a "weird way," but they checked with the lab to make sure it was a viable result. All is well. Follow up in 6 months as usual unle
17 comments
Read more

Can I get a do-over?

If you are in need of a laugh at another's expense, I invite you to read on... really, it's totally ok. I can take it. This might end up long, but I wanna remember this special day. Oh so special... Today is my first day to have both girls and be on my own. Yeah, it's been two weeks, but I'm apparently slow at learning how to deal with this kind of thing. I knew it would be a challenge, but I thought with starting way early, we could make it. The quick ending is that we did make it...but that's not really the whole story. Kinlee's been sleeping til about 9 am or so after getting up twice in the night. That's ok, I'm dealing with it. But since Braska is supposed to be at school at 10 am on Mondays, I thought I better not sleep in like I prefer, and instead, I should get up and get things moving earlier to be sure we're on time. Not a problem, since Braska decided to be up twice last night in addition to Kinlee's two times. One time overlapped...so
25 comments
Read more