(Backstory here… if needed.)
We saw Dr. L on Monday. He decided that although there IS Manifest-Latent Nystagmus present with Braska, it is not the primary concern that needs to be repaired first. He feels that the strabismus/esotropia (Left eye crossing inwardly) can be corrected first, hopefully making improvements in the head tilt that Braska consistently has. (That’s the tilt toward her right shoulder.)
The tip up, chin up in the air looking down her nose at everything, is mostly likely still related to the MLN, and we will be looking at a second surgery to correct that, probably in September.
So for now, we’re planning on surgery #1 on May 18 at StL Children’s. We appreciate your prayers for health between now and then, a successful and uncomplicated procedure that day, and a swift recovery with as minimal a level of discomfort as is possible.